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Our online Library houses a collection of resources related to care for the terminally ill and members of their social support networks. We have included Internet resources, citations and bibliographic information. If you would like to have references added to our library, please provide your contact information in our Guest Book.
Books:
Innovations in End-of-Life Care:Practical Strategies and International Perspectives Volume Three, 2002 Volume Two, 2001 Volume One, 2000 www2.edc.org/lastacts/about.asp
Choosing Death: Activate Euthanasia, Religion, and the Public Debate -Ron P. Hamel Ethical Issues in Death and Dying (2nd Edition) -Tom L. Beauchamp and Robert M. Veatch
www.iog.wayne.edu/iog/education/end-of-life/resources.html
New Life: Lessons in Faith and Courage from Transplant Recipients -Bob Violino A very helpful resource for social workers who support transplant patients and others with serious health problems. The book features stories of how people have dealt with the challenges of major illness and the need for a transplant. "New Life" has been endorsed by many organizations and individuals in the transplant community, including the Society for Transplant Social Workers. http://www.victorybusiness.net/book.html
The National Academies Press (NAP) was created by the National Academies to publish the reports issued by the National Academy of Sciences, the National Academy of Engineering, the Institute of Medicine, and the National Research Council, all operating under a charter granted by the Congress of the United States. NAP publishes over 200 books a year on a wide range of topics in science, engineering, and health, capturing the most authoritative views on important issues in science and health policy. http://books.nap.edu/books/0309087252/html/index.html
EPERC (End of Life/ Palliative Education Resource Center) National Hospice and Palliative Care Organization The National Hospice and Palliative Care Organization
"Geriatric and Palliative Care" The theme of this book is that palliative care is the best approach to the care of Chronically ill and frail elderly because of its focus on: quality of life, support for functional independence; and the centrality of the patient's values and experiences in determining the goals of medical care. (To order call, 1-800-451-7556)
Article on Dying with End Stage Renal Disease The Republican (Massachusetts) "His Decision to Die" 08/24/2003, By Patricia Norris, Staff Writer
Articles:
Other References:
Palliative and End-of-Life Resource Guide: An Abridged List:
Aging with Dignity: http://www.agingwithdignity.org Provides resource including advance directives, videos, and other materials
American Hospice Foundation: http://www.americanhospice.org Advances the hospice concept of care and promotes hospices that seek to meet growing and complex needs
American Pain Foundation: An online resource for people with pain
Choices in Dying: An organization dedicated to helping people with end of life decisions, which advocates freedom of choice in dying
National Hospice and
Palliative Care Organization (NHPCO) Conferences & Education
Ethical Wills: This site has information on creating an ethical will
Funeral Consumers Alliance: An interesting site for information about after death planning and more
Hospice Foundation of America: http://www.hospicefoundation.org HFA assists those who cope either personally or professionally with terminal illness, death, and the process of grief
National Cancer Policy Board http://www.iom.edu/board.asp?id=3798 The National Cancer Policy Board was established in 1997 at the Institute of Medicine and National Research Council to address broad policy issues that affect cancer in the United States and to recommend ways to advance the Nation's effort against cancer.
Guidebook For Graduate Medical Education Program Directors http://www.ama-assn.org/ama/pub/category/10365.html Published by the AMA Division of Graduate Medical Education, this new 115-page guidebook provides residency/fellowship program directors, program coordinators, institution officials, and others information about AMA services, products, and activities related to GME.
Dignity Resources http://www.DignityResources.com New not-for-profit education service and website designed to assist people with serious and terminal illnesses (as well as social workers, case managers, and palliative caregivers) in understanding the vital, but often complicated, issues surrounding End-of-Life finances.
American Medical Association News http://www.ama-assn.org/amednews/2003/06/16/prsc0616.htm Physicians told not to fear discipline for pain treatment
Latest Issue Of The Journal Of Hospice And Palliative Nursing Available Online This publication is the professional, peer-reviewed journal for nurses in hospice and palliative care settings.
Death & Dying:
Grant Providers:
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