Useful Links

The Resource Enrichment Center (REC) brings together some leading exponents of information and communication for which practitioners, graduate students, and the general public can utilize for knowledge building. We hope that those who use the Resource Enrichment Center will feel compelled to develop two-way collaboration for education and training with other end-of-life care providers. If you would like to recommend a link for REC, please provide your contact information in our Guest Book.

Senior Care Directory

Care.com’s Senior Care Directory: Find Local Listings of Senior Care Resources

Our Senior Care Directory is free to anyone and everyone, and provides a comprehensive listing of resources by state in seven categories: housing resources, transportation resources, home care, end-of-life care, legal resources, financial planning and management, and health care. Your visitors will also be able to access our articles that include how-to guides and even a blog on senior care issues. Again, the directory as well as our articles and blog are free to anyone and everyone, and have been an extremely valuable resource in the past.

National Association of Social Workers (NASW)

www.socialworkers.org

The National Association of Social Workers (NASW) is the largest membership organization of professional social workers in the world, with nearly 150,000 members. NASW works to enhance the professional growth and development of its members, to create and maintain professional standards, and to advance sound social policies.

Social Work Leadership Development Award (SWLDA)

www.swlda.org

The Social Work Leadership Development Awards, funded by the Project on Death in America of the Open Society Institute, aim to promote innovative research and training projects that reflect a collaboration between schools of social work and practice sites that will advance the ongoing development of social work practice, education, and training in the care of the dying.

Council on Social Work Education (CSWE)

www.cswe.org/

The Council on Social Work Education (CSWE) is a nonprofit national association representing over 3,000 individual members as well as 158 graduate and 453 undergraduate programs of professional social work education. This partnership of educational and professional institutions, social welfare agencies, and private citizens is recognized by the Council for Higher Education Accreditation as the sole accrediting agency for social work education in this country. CSWE works to ensure the preparation of competent social work professionals by providing national leadership and a forum for collective action. The main responsibility of CSWE is therefore to promote and maintain the high quality of social work education.

National Hospice and Palliative Care Organization (NHPCO)

http://www.nhpco.org/templates/1/homepage.cfm
NHPCO is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

Social Work Education Resources
www.nyu.edu/socialwork/ip/archives.php
Information for practice: news and new scholarship from around the world

Association for Death Education and Counseling

http://www.adec.org/

ADEC is one of the oldest interdisciplinary organizations in the field of dying, death and bereavement.

Care of Dying:
www.careofdying.org/
Committed to bring about cultural change regarding pain and symptom management and relief of suffering for persons living with and affected by life- threatening illness.

American Medical Association, “Education for Physicians on End-of-Life Care”:

www.ama-assn.org

“Founded more than 150 years ago, AMA's strategic agenda remains rooted in our historic commitment to standards, ethics, excellence in medical education and practice, and advocacy on behalf of the medical profession and the patients it serves.

AMA's work includes the development and promotion of standards in medical practice, research, and education; strong advocacy agenda on behalf of patients and physicians; and the commitment to providing timely information on matters important to the health of America. The AMA strives to serve as the voice of the American medical profession. Being that voice is our mission.”

Canadian Hospice Palliative Care Association

http://www.chpca.net

The Canadian Hospice Palliative Care Association (CHPCA) is the national association which provides leadership in hospice palliative care in Canada.

City of Hope
http://www.cityofhope.com/home.asp

A Comprehensive Cancer Center, is an innovative biomedical research, treatment and educational institution. Located near Los Angeles, California, City of Hope is dedicated to the prevention and cure of cancer, HIV/AIDS, diabetes, and other life-threatening diseases.

The Center to Advance Palliative Care:

www.capc.org

“The Center to Advance Palliative Care (CAPC) is a resource to hospitals and other healthcare settings interested in developing palliative care programs. CAPC is a national initiative supported by The Robert Wood Johnson Foundation with direction and technical assistance provided by Mount Sinai School of Medicine.

Dying Well:

www.dyingwell.org

“Dr. Ira Byock, long time palliative care physician and advocate for improved end-of-life care, and a past president of the American Academy of Hospice and Palliative Medicine, provides written resources and referrals to organizations, web sites and books to empower persons with life threatening illness and their families to live fully.”

Innovations in End-of-Life Care: an international journal of leaders in end-of-life care:

www2.edc.org/lastacts/about.asp

Innovations is an international online forum and peer-reviewed journal for leaders in end-of-life care. Bimonthly, thematic issues aim to promote more humane, comprehensive and coordinated care to persons with life-threatening illness and their families, such that patients experience enhanced comfort, higher physical functioning and a greater sense of well-being at the end of life.

The purpose of Innovations in End-of-Life Care, an international journal and on-line forum, is to improve the quality of care provided to patients near the end of life and to their families, through the dissemination and critical examination of innovative practices being implemented throughout the world.

www.medicaring.org

The Washington Home Center for Palliative Care Studies (CPCS), formerly Center to Improve Care of the Dying, is a unique, interdisciplinary team of professionals engaged in research, advocacy, and educational activities designed to improve care of persons with disabling and eventually fatal illnesses.

The American Pain Society

www.ampainsoc.org

The American Pain Society is a multidisciplinary organization of basic and clinical scientists, practicing clinicians, policy analysts, and others. The mission of the American Pain Society is to advance pain-related research, education, treatment and professional practice.

American Alliance of Cancer Pain Initiatives

http://www.aacpi.wisc.edu/

The American Alliance of Cancer Pain Initiatives is dedicated to promoting cancer pain relief nationwide by supporting the efforts of State Cancer Pain Initiatives.

Exam Item / Test Question Writing Manual
http://www.nbme.org/about/itemwriting.asp

Life’s End Institute

http://www.lifes-end.org

An innovative community project is working to improve how people experience dying, care giving, death, and bereavement. Life’s End Institute focuses on community-based research and public engagement to foster social change.

Project Compassion

http://www.project-compassion.org/

Project Compassion is a community-based organization providing education, advocacy, and support for all people as they deal with serious illness, death, and grief as a natural part of life. Project Compassion is the end-of-life care coalition for Durham, Orange, and Chatham counties in North Carolina.

Rallying Points

http://www.betterending.org/index2.html

Rallying Points assists community-based coalitions in improving care and caring for those nearing the end of life. Rallying Points encourages coalitions to identify community needs for better care near the end of life, advocate for health system changes to bring about better care and develop specific projects that support dying people and their families.

Community-State Partnerships To Improve End-of-Life Care

http://www.midbio.org/
Provides grants to support statewide coalitions composed of citizens, health care professionals, educators and policymakers that identify problems, make recommendations and build public support for practical policies, regulations and guidelines to improve care of the dying. Publishes State Initiatives in End-of-Life Care.

End-of-life Issues and Care: Resources

http://www.apa.org/pi/eol/resources.html#3

From this site, we can find: Books, Journal Articles and Organization.

New England Research Institutes

www.neri.org

“At NERI, our business is studying disease and effective treatment options - and then educating people about our findings so that they can understand the risk factors for a disease, the effects of a particular drug, how to change their health behaviors and attitudes, and most of all how to enjoy healthier, longer lives.”

Vitas Hospice (Foundation For End-Of-Life Care)

http://www.vitascharityfund.org/

The Foundation serves as a sstaining source of financial support to nurture fundamental change in the way death, dying and bereavement issues are addressed in our society. This revolution in the way death is perceived and experienced is encouraged through the funding of an array of initiatives-academic and clinical, philosophical and practical, large and small.

Hospice Information

http://www.scu.edu/Hospice/homepage.html

Sponsored by Dale Larson, Ph.D., Associate Professor and Director of the Graduate Health Psychology Program at Santa Clara University. Features a collection of "Great Ideas" on many hospice-related issues, from bereavement to fundraising for a hospice facility.

Approaching Death: Improving Care at the End of Life

http://www7.nationalacademies.org/giving/
This report, from a committee of the Institute of Medicine, calls for changes to improve end-of-life care, better training of health care professionals, reform of outdated laws that inhibit the use of pain-relieving drugs, and testing of new payment options.

Association of Cancer Online Resources Inc.

http://www.acor.org/
ACOR is a nonprofit patient advocacy organization founded to develop, support and represent Internet based resources for up-to date information to cancer patients.

The Cochrane Pain, Palliative Care & Supportive Care Collaborative Review Group

http://www.jr2.ox.ac.uk/cochrane/index.html
The work of the PaPaS includes the preparation, maintenance & dissemination of systemic reviews of randomized controlled trials of interventions concerned with pain and palliative care.

Compassion in Dying

http://www.compassionindying.org/
CID assists patients & families in reviewing cases of suspected inadequate treatment of pain, at no charge. If you know of a case where a dying patient is believed to have received inadequate pain care contact CID.

Zen Hospice Project

http://www.zenhospice.org/

A good resource for those who want to inquire into a Buddhist approach to death and dying.

Elder Care Online

http://www.ec-online.net/

Eldercare Online is a beacon for people caring for aging loved ones. Whether you are caring for a spouse, parent, relative or neighbor, they are committed to providing an online community where supportive peers and professionals help you improve quality of life for yourself and your elder.

American Academy of Hospice and Palliative Medicine
http://www.aahpm.org/
An international organization of physicians dedicated to the advancement of hospice and palliative medicine in the management of the terminally ill.

EPEC: Education for Physicians on End-of-Life Care
http://www.epec.net
The EPEC Project, supported by a grant from the Robert Wood Johnson Foundation, is an ambitious, 2-year initiative designed to educate physicians across the United States on the essential clinical competencies in end of life care. The EPEC curriculum has been designed with input from nationally respected experts in the field and feedback from participants in early training conferences. It combines didactic sessions, videotape presentations, interactive discussions, and practical exercises.

Harvard Medical School Program in Palliative Care Education and Practice
http://www.hms.harvard.edu/cdi/pallcare/
The Program in Palliative Care Education and Practice offers intensive learning experiences for physician and nurse educators who wish to become experts in the clinical practice and teaching of comprehensive, interdisciplinary palliative care, as well as gain expertise in leading and managing improvements in palliative care education and practice at their own institutions.

Liaison Committee on Medical Education (LCME)
http://www.lcme.org
Nationally recognized accrediting authority for medical education programs leading to the M.D. degree in U.S. and Canadian medical schools. Accreditation by the LCME confers eligibility for participation in Federal student loan programs. Most state boards of licensure require that U.S. medical schools be accredited by the LCME, as a condition for licensure of their graduates. The site includes the latest standards in medical education and will allow the user to follow the status of end of life care standards.

Growth House
http://www.growthhouse.org/
An international gateway to resources about life-threatening illnesses and end of life issues, including hospice and home care, palliative care, pain management, death with dignity, and bereavement

Exam Item / Test Question Writing Manual
http://www.nbme.org/about/itemwriting.asp
The National Board of Medical Examiners' Test Item Writing Manual. This site provides instructions on how to download a free copy of the manual, written by Drs. Susan Case and David Swanson.

Journal of Palliative Medicine (quarterly publication)
http://www.catchword.com/titles/10966218.htm
This interdisciplinary journal deals with patient care at the end-of-life, covering the latest developments in drug and non-drug therapies for symptoms and syndromes that affect patients with life-threatening diseases. It also explore palliative care education reports on the latest development in pain and symptom management, and highlights palliative care programs around the U.S. and the world.

http://www.acponline.org/ethics/eolc.htm

ACP-ASIM End-of-Life Care Consensus Panel and Patient Education Work Group

www.bmj.com

The General Medical Journal Website

Public Agenda Issue Guide: Right to Die

Right to Die: Public Agenda on Line

With Eyes Open

With Eyes Open (PBS)

Mourning, Intensive Care, Watch and Ward, Afterlife

http://www.pbs.org/wnet/onourownterms/about/

On our Own Terms: Moyers on Dying (PBS)

http://www.hospitalconnect.com/aha/awards-events/circle_of_life/index.html