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Director:
 Karen Bullock
PhD, MSW
 
Data Processing Programmer: 
Eric Bulewich, MSW
 
Research Assistant:
Jieun Yoo
 

For the Public

 

This page provides information that is intended to assist the general public in improving care at end-of life.  If you have additional resources that you would like to have added to this page, please visit our Feedback Page.

 

 

      Continuum of Care: 

  • http://botw.org/top/Health/Senior_Health/
    Best of the Web - Senior Health  

    a helpful resource for researching senior health on the Internet

  • http://www.caregiver.org/caregiver/jsp/home.jsp

    Family Caregiver Alliance

    FCA is a public voice for caregivers.  Their pioneering programs "information, educations, services, research, and advocacy"

    support and sustain  the important work of families nationwide caring for loved ones with chronic, disabling heath conditions.

  • www.aspho.org
    The American Society of Pediatric Hematology/Oncology (ASPH/O) is a professional society of pediatric  hematologists/oncologists,who study and treat childhood cancer and blood diseases

  • www.misschildren.org
     The M.I.S.S. Foundation is a nonprofit, 501(c)3, international organization which provides immediate and ongoing support to grieving families, empowerment through community volunteerism opportunities, public policy and legislative education, and programs to reduce infant and toddler death through research and education.

  • www4.nas.edu/news.nsf/isbn/0309084377?OpenDocument

    Improving Care for Dying Children

  • http://cancer.gov/cancerinfo/youngpeople/page1

    National Cancer Institute

    Young People with Cancer: A Handbook for Parents

    The National Cancer Institute has created a special website to provide information to both clinicians and researchers about educational resources and funding opportunities in palliative care:

    http://cancer.gov/researchfunding/announcements/symptommanagement

    Monograph 32, The National Institutes of Health State-of-the-Science Conference on Symptom Management in Cancer: Pain, Depression, and Fatigue, is now available.

    http://jncicancerspectrum.oupjournals.org/jncimono/

    http://jncicancerspectrum.oupjournals.org/jncimono/current.shtml

     

  • http://www.cancer.gov

    Cancer.gov, the National Cancer Institute’s web Site, provides accurate, up-to-date information on many types of cancer, information on clinical trials, resources for people dealing with cancer, and information for researchers and health professionals.

  • http://www.cancerlifecenter.com/featuresub/oncli/ortho/

    Cancer Life Center: Information about your options in combating the side effects of your Chemotherapy

  • http://www.iom.edu/board.asp?ID=3798 The National Cancer Policy Board was established in 1997 at the Institute of Medicine and National Research Council toaddress broad policy issues that affect cancer in the United States and to recommend ways to advance the Nation's effortagainst cancer.

  • www.sccm.org 

    Medicine (SCCM) is one of the largest multidisciplinary, multiprofessional organization is dedicated to ensuring excellence

    and consistency in the practice of critical care medicine. The Society offers a variety of activities that promote excellence in

    patient care, education, research, and advocacy.

  • www.aarp.org

    • (Individuals over 50 years old).

  • http://www.DignityResources.com

    New not-for-profit education service and website designed to assist people with serious and terminal

    illnesses (as well as social workers, case managers, and palliative caregivers) in understanding the

    vital, but often complicated, issues surrounding End-of-Life finances.

  • http://tango01.cit.nih.gov/sig/home.taf?_function=main&SIGInfo_SIGID=113
    End of Life Interest Group

  • http://www.agingresearch.org/

    The nation's leading non-profit organization dedicated to supporting and accelerating the pace of medical discoveries to vastly improve the universal human experience of aging and health.

  • http://www.hearttoheartradio.org/

    A series of three, hour-long audio documentaries designed for national radio broadcast. This series looks at the care given &arise from &; cultural misunderstanding, from fear over the use of morphine and other drugs, from lack of funding to pay for good programs.

  • http://www.geocities.com/ncaaaus/Caregivers.html

    CT's National Family Caregiver Support Program (NFCSP)

    In a recent survey by the National Family Caregivers Association (NFCA), 54 million people were family caregivers to a loved one who was ill, disabled, or elderly. Although providing care to a loved one can be a rewarding experience, it can also be very difficult. The NFCSP will offer some services and support that caregivers need in order to continue their caregiving role.

  • http://www.pcoa.org

    Pima Council On Aging

    “Someday you or someone you know will need PCOA”

    The mission of the Foundation is to develop a sustainable and broad spectrum-funding base, which will insure the continuity of PCOA and assist it in becoming less dependent upon the unpredictability of government funding.

  • http://www.elderweb.com/

    Eldercare Web

    Eldercare Web is one of the oldest and most comprehensive eldercare gateways on the World Wide Web! It's a collection of hundreds of reviewed links to on-line information about health, financing, housing, aging, and other issues related to the care of the frail elderly. This Web is designed for caregivers, family, healthcare providers, and professional advisors of elderly people with care needs.

  • http://www.gwu.edu/~cicd/

    Center to Improve Care of the Dying

    The Center to Improve Care of the Dying (CICD) was founded in the belief that life under the shadow of death can be rewarding, comfortable, and meaningful for almost all persons--but achieving that goal requires real change in the care system. CICD is a unique, interdisciplinary team of committed individuals, engaged in research, public advocacy, and education activities to improve the care of the dying and their families.

  • http://www.americangeriatrics.org/
    The American Geriatrics Society

    AGS is a professional organization of health care providers dedicated to improving and effecting change for the health and well being of all older adults.

  • http://www.mskcc.org/mskcc/html/44.cfm

    Memorial Sloan Kettering Cancer Center
    MSKCC's web site provides a wide range of information for medical professionals, patients, their families, and the general public.

  • http://is.dal.ca/~pedpain/prohp.html

    Pediatric Pain
    This site provides professional, research, and self-help resources for health care workers, researchers, and parents caring for children in pain.

    http://is.dal.ca/~pedpain/prohp.html

    Pediatric Pain
    This site provides professional, research, and self-help resources for health care workers, researchers, and parents caring for children in pain.

  • http://www.hospicepatients.org/hospic60.html

    Hospice Patients Alliance

    Signs and Symptoms of Approaching Death

     

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      Loss:

  • http://www.grieflossrecovery.com/

    Offers reflections on grief and loss through poems, articles, a newsletter, memoirs, memorials, links, and on-line grief support.

  • http://www.beyondindigo.com/loss/

    Beyond Indigo:  Healing from Loss

  • http://goodgrief.org/

    How to deal with it, and how to turn it into a positive, creative experience.

  • http://www.griefnet.org/

    GriefNet.org is an Internet community of persons dealing with grief, death, and major loss.  They have 47 e-mail support groups and two web sites. Their integrated approach to on-line grief support provides help to people working through loss and grief issues of many kinds.

  • http://www.journeyofhearts.org/jofh

    Journey of Hearts:  An Online Healing Place for Anyone Grieving a Loss.

    The site combines medicine, psychiatry, poetry, prose and images to provide resources and support for those going through the grief process.

  • http://www.senior-tips.com/OurGurus.asp

    Information about seniors with free tips, links, weekly newsletters (senior citizen activities, services, discounts, health,

    cooking for one or two, assisted living and nursing homes, grief and loss, travel)

      Bereavement:

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      Futile Care:

      Hospice Care:

      Consumer Fact Sheets:

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